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1. 特別な医療が必要な小児 children with special health care needs
2. 里親により養育された小児の包括的健康管理 comprehensive health care for children in foster care
3. 胎児性アルコールスペクトラム障害：マネージメントおよび予後 fetal alcohol spectrum disorder management and prognosis
4. 慢性疾患を有する小児のケアに対するサポートサービス support services for the care of chronically ill children
5. 障害児における安全性の向上 promoting safety in children with disabilities

English Journal

Optimizing health and health care systems for children with special health care needs using the life course perspective.

Bethell CD, Newacheck PW, Fine A, Strickland BB, Antonelli RC, Wilhelm CL, Honberg LE, Wells N.Author information The Child and Adolescent Health Measurement Initiative, Oregon Health and Science University, Portland, OR, USA, bethellc@ohsu.edu.AbstractTo date, life course research in maternal and child health has largely focused on elucidating fetal and early life influences on adult health and less on promoting the health of children with special health care needs (CSHCN). Consideration of life course theory (LCT) for CSHCN is especially important given their increasing prevalence and comorbidity, their disproportionate vulnerability to weaknesses or instability in the health care system, and the growing evidence linking child and adult health and quality of life. In this commentary we seek to advance the consideration of LCT for CSHCN. We (1) briefly summarize key issues and the importance of a life course approach for CSHCN; (2) present illustrative findings from population-based cross-sectional data that serve to generate hypotheses that can be more rigorously examined when population-based longitudinal data become available; and (3) discuss the application of life course principles as a driving force in the continued implementation and improvement of integrated systems of care for CSHCN.
Maternal and child health journal.Matern Child Health J.2014 Feb;18(2):467-77. doi: 10.1007/s10995-013-1371-1.
To date, life course research in maternal and child health has largely focused on elucidating fetal and early life influences on adult health and less on promoting the health of children with special health care needs (CSHCN). Consideration of life course theory (LCT) for CSHCN is especially importa
PMID 24101437

The development and implementation of an interdisciplinary on-line academic course using a life course perspective.

Anderson LS, Schroth M, Marcus M, Becker C, Pfeil D, Yngsdal-Krenz R, Silvis D, Drier C, Marshall H.Author information Madison School of Nursing, University of Wisconsin, 600 Highland Avenue K6/328 CSC, Madison, WI, 53792-2455, USA, lsanderson@wisc.edu.AbstractThe University of Wisconsin-Madison Pediatric Pulmonary Center (UW PPC) provides interdisciplinary leadership training for graduate students and postgraduate professionals. The training includes a three-credit on-line course entitled Interdisciplinary Care of Children with Special Health Care Needs. This paper describes the course, the content and organization of which was guided by the life course perspective (LCP). The UW PPC team used the LCP to guide course organization, content development, and evaluation approaches. UW PPC trainees took responsibility for content areas, performed literature reviews and reviews of resources, and suggested student activities. Course content was focused on the child with special health care needs (CSHCN) embedded in contextual environments of family, community, culture, and larger social and public policy arenas. The content included three case-study videos that followed a child with cystic fibrosis from birth to age 18. Key concepts of the LCP were woven in throughout the videos and other course materials. Emphasis was on representing development of the individual during critical/sensitive periods and on social determinants of health. At semester's end, qualitative and quantitative student evaluation results were very positive for all areas of the course. The final course paper, organized similarly to course modules, synthesized all aspects of the course. A successful paper included LCP concepts woven throughout to show integration of course content. The LCP provided a useful framework for course organization and content, and served as a lens through which students came to understand the care needs of CSHCN and their families. A course such as this can serve the important goal of educating future maternal child health professionals in using the LCP to understand how multiple determinants of health interact across the life span to produce health outcomes in this population.
Maternal and child health journal.Matern Child Health J.2014 Feb;18(2):443-9. doi: 10.1007/s10995-013-1282-1.
The University of Wisconsin-Madison Pediatric Pulmonary Center (UW PPC) provides interdisciplinary leadership training for graduate students and postgraduate professionals. The training includes a three-credit on-line course entitled Interdisciplinary Care of Children with Special Health Care Needs.
PMID 23722326

Understanding Utilization of Outpatient Clinics for Children with Special Health Care Needs in Southern Israel.

Peres H, Glazer Y, Landau D, Marks K, Abokaf H, Belmaker I, Cohen A, Shoham-Vardi I.Author information Department of Anthropology and Sociology, Ashkelon Academic College, 12 Ben-Zvi Ave, 78211, Ashkelon, Israel, hperes@post.bgu.ac.il.AbstractTo understand the pattern of utilization of ambulatory care by parents of children with special health care needs (CSHCN) and to explore parental challenges in coping with health maintenance of their infants after discharge from a neonatal intensive care unit (NICU). CSHCN require frequent utilization of outpatient ambulatory clinics especially in their first years of life. Multiple barriers are faced by families in disadvantaged populations which might affect adherence to medical referrals. Our study attempts to go beyond quantitative assessment of adherence rates, and capture the influence of parental agency as a critical factor ensuring optimal utilization of healthcare for CSHCN. A prospective, mixed-methods, cohort study followed 158 Jewish and Bedouin-Arab infants in the first year post discharge from NICU in southern Israel. Rates of utilization of ambulatory clinics were obtained from medical records, and quantitative assessment of factors affecting it was based on structured interviews with parents at baseline. Qualitative analysis was based on home visits or telephone in-depth interviews conducted about 1 year post-discharge, to obtain a rich, multilayered, experiential perspectives and explained perceptions by parents. Adherence to post-discharge referrals was generally good, but environmental, cultural, and financial obstacles to healthcare, magnified by communication barriers, forced parents with limited resources to make difficult choices affecting utilization of healthcare services. Improving concordance between primary caregivers and health care providers is crucial, and further development of supportive healthcare for CSHCN in concordance with parental limitations and preferences is needed.
Maternal and child health journal.Matern Child Health J.2014 Jan 12. [Epub ahead of print]
To understand the pattern of utilization of ambulatory care by parents of children with special health care needs (CSHCN) and to explore parental challenges in coping with health maintenance of their infants after discharge from a neonatal intensive care unit (NICU). CSHCN require frequent utilizati
PMID 24414986

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